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COMMENTARY
A survivor’s song for unsung
heroes
By JERRY HEASTER
The Kansas City Star
Let’s
see. Where was I before I was so rudely interrupted? Oh,
yes. I was trying to fend off the lymphoma beast, and
the chemotherapy concoctions devised to vanquish it.
As things turned out, however,
the cure occasionally proved worse than the disease.
With time, though, the pharmaceutical miracles that
seldom make the headlines prevailed, leaving the patient
slightly the worse for wear but still able to string a
few words together.
If you’ve had a relative or
friend who has had cancer, perhaps you’ve heard of
chemo-brain. There’s something to it for some of us who
have allowed their bodies to be assaulted by sometimes
highly toxic chemicals in the name of besting the
malignancy intruding into our lives.
In my case it’s a matter of
regaining previous mental acuity, an occasional slurring
of speech and chronic fatigue, which everyone says is
common after chemo. But remaining on the right side of
the grass makes it worthwhile when the outcome is
reasonably satisfactory.
These chemicals, incidentally,
come courtesy of the same companies the trial lawyers
and gullible juries enjoy soaking for tens of millions
of dollars because somebody may have had a fatal
encounter with an industrial-strength painkiller.
What the jury members seem not
to appreciate, though, is that it will take only a
relative few of these verdicts to punish Big Pharma out
of business. The worst-case scenario is that our biggest
and best drug companies will either be out of business
or without the resources to develop the relatively
unknown drugs that may save jurors or their loved ones
from a life-threatening disease.
Another epiphany experienced
along this unpleasant and often perilous journey was the
mostly unheralded role played by care providers in the
cancer-fighting industry.
When somebody is involved in the
disease, the end — good, bad or otherwise — usually is
described as the patient “winning” the battle or
succumbing after a “long” fight with the disease.
While it’s true the human
survival instinct is an important part of the
cancer-fighting process, those who don’t get nearly
enough credit for their unstinting day-in, day-out
efforts are the caregivers. These are the physicians,
nurses and their support staffs who not only work hard
to perform what sometimes prove to be daily miracles,
but also often shield patients from bureaucratic
minutiae, allowing them to devote full energies to the
most important job at hand — getting better.
These are the true warriors in
anyone’s fight with cancer. And no patient, nor anyone
in a patient’s support group, should forget it.
The caregiver’s life with a
cancer patient is special because it’s usually a
long-term relationship involving life-and-death issues.
One of the most melancholy
aspects of the bond many of these caregivers forge with
their charges is that, one way or another, the patient
always moves on. They either happily move out of
treatment or they pass on. Either way a big hole is left
in the caregiver’s life, but life goes on, because
there’s no end of patients needing help.
Although out of treatment and
still vertical, my debt in particular and society’s in
general to these unsung heroes is never-ending. I’m not
in remission, and probably never will be with my form of
non-Hodgkin’s lymphoma. But whatever time I have left I
owe to those who spend their workdays helping cancer
survivors survive, whether for the long term or the
short term.
To those who sent along
expressions of support, thank you. They brightened some
very dark days.
Jerry Heaster’s column will appear on Wednesdays
and Sundays. Write to him c/o The Kansas City
Star, 1729 Grand Blvd, Kansas City, MO 64108;
send e-mail to
jheaster@kcstar.com ; or call (816) 234-4297
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